In this profession I frequently work with people who express frustration over the lack of funding and programming for their specific type of cancer. Once they or their loved one are diagnosed with one of these “less supported” cancers, it becomes personal. Clients have said they feel forgotten, ignored or less important. They ask, “Where are all the walks and fundraisers for my cancer? Where is the media attention? How do we change this?”
The best answer I can offer is - ADVOCATE. Let your voice be heard! Reach out to others who share your frustration, and perhaps together you can develop a program or an event. There are many health care professionals who are here to support you, and probably a lot more survivors who share your diagnosis than you are aware of.
What has helped you when you felt that your type of cancer was under-represented?
~ Julie, Buddy Kemp Cancer Support Center